Figi passed away at the Kid’s Hospital Colorado after suffering a seizure on Tuesday early morning “resulting in respiratory failure and heart attack,” according to a Facebook post from her mother, Paige Figi.
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” Charlotte is no longer suffering. She is seizure-free permanently. Thank you a lot for all of your love. Please respect their personal privacy at this time,” a statement shared on behalf of the family read.
Paige later on described in an upgrade that her whole family– including Charlotte– had been ill considering that early March, but “did not at first fit all of the criteria for COVID-19 screening.”
After her child’s signs intensified, Charlotte was confessed to the pediatric intensive care unit on Friday, where she was “dealt with on the COVID-19 designated flooring utilizing all of the medical protocols set in place.”
Paige stated Charlotte checked negative for COVID-19 and was discharged from the health center on Sunday when she “relatively started to improve.” The teenager returned to the PICU after a seizure on Tuesday.
” Provided our household’s month-long history with disease and regardless of the unfavorable test results, she was treated as a most likely COVID-19 case,” Paige wrote. “Her fighting spirit held out as long as it might and she ultimately passed in our arms quietly.”
Charlotte was detected with Dravet syndrome, an unusual form of epilepsy that triggers frequent seizures, at a young age. At 3 years old, the young girl was suffering up to 60 seizures a day and “could not talk or walk or eat,” her mom informed PEOPLE in 2014.
After trying an selection of different treatments with no outcomes, Charlotte’s moms and dads relied on medical marijuana oil after papa Matt found a video online about a California young boy who Dravet treated with a marijuana stress that was low in THC and high in CBD, according to CNN
” We were pioneering the entire thing; we were guinea pigging Charlotte,” Paige informed the outlet in 2013.
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According to Charlotte’s parents, their child’s health began to enhance drastically after taking the oil. “When she didn’t have those three, four seizures that initially hour, that was the very first indication,” Paige remembered. “And I believed well, ‘Let’s go another hour, this has actually got to be a fluke.'”
Her story caused the development of Charlotte’s Web, a specific strain of cannabis with a high cannabinoid to be used for medical functions. It also helped develop the Realm of Caring Structure, a not-for-profit organization that supplies marijuana to those struggling with illness– consisting of epilepsy, cancer, several sclerosis and Parkinson’s– who can not afford the alternative treatment.
After families with kids who have comparable disorders flocked to Colorado in order acquire CBD treatments lawfully, other states started to pass laws that made the compound quicker available to the general public.
In 2014, hemp– which can be used to produce CBD– was gotten rid of from Controlled Substances Act. 4 years later on, Congress authorized a costs that legislated industrial hemp.
” Some journeys are long and boring and others are brief and poignant and implied to change the world. Such was the path picked by this little lady with a catastrophic form of epilepsy called Dravet Syndrome,” a homage for Charlotte published on the Realm of Caring Foundation’s Facebook page read. “Your work is done Charlotte, the world is changed, and you can now rest understanding that you leave the world a much better location.”